This group was formed for those of us who have rare disorders, and our care-givers, families, and friends. We welcome researchers and medical professionals and students. A rare disorder is defined as one where the number of people afflicted in the United States is 200,000 or fewer. Some examples are: Vasculitis, Granulomatous Angiitis of the central nervous system, CNS Vasculitis,...
Patient help and support with illness and treatment (A/I - Autoimmune): Addison's Asthma Alopecia areata Amyloidosis Ankylosing spondylitis Antiphospholipid (APS) A/I aplastic an. A/I hepatitis A/I myocarditis A/I thrombocytopenic purp. (ATP) Behcet’s Bullous pemph. Cardiomyopathy Celiac sprue (nontropical) Chagas Chronic inflammatory demyelinating polyneuropathy (CIDP) Churg-Strauss Cicatricial...
We are a community of loving supportive people who understand what its like to be sick. We live with illness, injury, disability, or care for those that do. This group is a place where you are free to be yourself. Share your frustrations about being sick, friendships, family, and just about anything! We are the family who understands when no one else does! We live your life too! You are welcome t...
AMBerners is a list that provides a private forum (restricted access) for people who are or have been caring for a Bernese Mountain Dog (BMD), a Petit Basset Griffon Vendeen (PBGV), or a dog of other breed or mix, suffering from Aseptic Meningitis (AM). Aseptic Meningitis is also known as Steroid Responsive Meningitis, Non-Septic Meningitis, Auto-Immune Meningitis, and sometimes it is equated wit...
The Polyarteritis Nodosa Research and Support Network (PRSN) is a not-for-profit organization helping patients, caregivers, and researchers learn more about the autoimmune vasculitis, Polyarteritis Nodosa (PAN). Although we focus on PAN, other vasculitic disease patients are welcome to join. Our mission is to increase awareness in the patient and medical community about PAN.
Savvy list provides info-resources, support and contact opportunities on the rare, inflammatory autoimmune illnesses. - Members present Churg-Strauss,Wegener's granulomatosis, Henoch-Schoenlein, Polyarteritis Nodosa, giant-cell or temporal arteritis, takayasu, polyangiitis, Microscopic polyangiitis, leukocytoclastic Vasculitis, and related auto immune, secondary and overlapping syndromes,...
The Vasculitides Behcet's Disease Buerger’s Disease Central Nervous System Churg Strauss Syndrome Cryoglobulinemia Giant Cell Arteritis Henoch-Schönlein Purpura Hypersensitivity Vasculitis Kawasaki Disease Microscopic Polyangiitis Polyarteritis Nodosa Polymyalgia Rheumatica Rheumatoid Vasculitis Takayasu’s Arteritis Wegener’s Granulomatosis
Welcome to the Yahoo group offering a VOICE for vasculitis patients their families and carers. The purpose of this Internet group page is to keep those who live with systemic vasculitis conditions (such as those listed below) and their carers in touch. The aim is to become a forum for discussions, a place where new information can be shared or even as a point of contact if a...
For people or caregivers of people with Giant Cell (Temporal) Arteritis or anyone interested in this form of autoimmune vasculitis What is Giant Cell Arteritis? A serious disease characterized by inflammation of the walls of the blood vessels (vasculitis). The vessels affected by the inflammation are the arteries (hence the name "arteritis"). The age of affected patients is usually...
This group is intended as a support group and a research resource for medical professionals, patients and families who wish to learn more about a little known lethal, yet treatable, blood disorder that causes hypercoagulation. This disease is known under many names and combinations of initials (APS, APLS, Catastrophic APS, Primary and secondary APS, Sero-Negative APS, Sticky Blood, as one of the...
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